Monday, April 28, 2014

5 Fun Things To Do If You Have Cancer: #2 PARTY!

In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #2:
PARTY!

No one hears that they have cancer and immediately feels the urge to celebrate.  But, most people immediately register cancer as a huge life-changing event. Call me crazy, but life-changing events (marriages, babies, birthdays) often coincide with partying. 

Now, if you have cancer and that doesn’t give you the urge to party, that’s totally cool. In fact, that’s normal. I think society can put a lot of pressure on people who are sick to act like they’re okay, and I don’t want to be a part of that.  That said, if you have cancer and you need to escape your feelings of sadness and anger and fear, I have found parties are an effective way of taking a vacation from those feelings.

Here are some cancer party ideas, based on my experience;

Party Before Surgery/Chemo/Radiation
On the eve of any of these smaller life changes within the huge life change that is cancer, I can pretty much guarantee you will feel scared, anxious, stressed, sad, angry, or some combination of all of these.  Being with friends and “celebrating” helped me expel a lot of this nervous energy.
                 
                  My Pre-Chemo Party
A week before I started chemo, I went home to Wisconsin and my friend Julie got a group of my “home friends” together to come hang out.  The resulting party felt like a southern Sip-And-See.  A Sip-And-See, is like a baby shower after a baby is born where people drink tea (sip) and meet the new baby (see).

In this case, we sat in my basement and I got to catch up with my friends and talk about everything that happened to me so far..  They brought a lot of party foods, which were as essential as the conversations.

At that time what I really needed was to talk through things.  I was just devising my plan for treatment, and I wanted to know that I had my friends’ support.  This party gave me that.

                  My Pre-Surgery Party
Two days before surgery, my boyfriend surprised me by reserving us a room at the Waldorf-Astoria (!).  After we checked in, my boyfriend took me to a jazz club nearby where a few of my friends were waiting to surprise me.  We had a couple drinks and then went back to our room at the Waldorf, where we drank and ate chocolate covered strawberries and picked up some Dutch guys and jumped on the bed and sang “Happiness” so loud that security came.  Twice. 

This party involved no talk of cancer, which was what I needed at this point during my treatment. For a night I was able to be mostly normal and a little crazy, which was perfect.

Hair Cutting/Head Shaving Party
When I was told I was going to lose my hair, I called my hair stylist and told her I wanted to cut my hair short to prepare.  My friend Julie planned a whole party for me.  She invited all my friends to the salon, and several (including Julie) planned to cut their hair in solidarity.
I was really, really depressed about losing my hair, but knowing my lovely long-haired friends were willing to lose their locks with me was really touching.
Amazingly, I found myself looking forward to cutting my hair, when I had previously been inconsolable at the prospect.


      Chemo Party
So, the chemo nurses hated this, but I had an entourage every time I did chemo. Having my friends with me during my infusions (which were essentially 8 hours long), made chemo almost fun. Seeing my friends (who would often bring food and play music and bring coloring supplies) every three weeks was something that I actually missed when chemo was over.
The parties weren’t ragers or anything… they were pseudo parties… like eight hour tea parties without tea and with even more gossip.  They were maybe the best cancer parties I had.  I mean, the memory of them makes me miss chemo.  Almost.

You Made It!
A great reason to party is making it through a phase of treatment—getting through surgery, finishing chemo or radiation.  When I came home from surgery, I wasn’t ready to party, but the fact that my roommate decorated my apartment with a big party-style banner definitely lifted my spirits.
Now, it takes two to tango, and sometimes it only takes to make a party.  When I finished chemo, my boyfriend took me out on a date night to celebrate which was the exact amount of party I was able to handle.  Whether you’re a caregiver, friend, parent, or sibling this one on one celebration is great during phases of treatment when a big to-do might feel like too much.  The charm of these date nights was that I didn’t have to do a thing.  My boyfriend took care of everything at a time when I needed to be taken care of.
          
Terminal Cancer Party
I don’t have any first hand experience with this kind of party, and I feel the need to tread lightly so as not to offend anyone.  Online, I found a few examples of celebrations held by terminal cancer patients.  One told the story of a 21-year-old girl who always wanted to be a bride, so, her friends and family threw her a mock bachelorette party with shots and strippers and everything else you’d imagine. I also read was about Chuck Brandt, a gentleman with pancreatic cancer who just wanted a big party before he went (figuring he’d be “too dead to enjoy his funeral”). 
I can’t imagine the horror of receiving this kind of diagnosis.  But I would guess it wouldn’t be the kind of thing I’d be able to celebrate.  That said, this blog is part of a list of ways to have fun when you have cancer. From the day we’re born until the day we die, we have the choice to have fun or have a tantrum. I would imagine a terminal diagnosis would be full of a lot of fear and sadness and tantrums about “why me?” and that is as it should be. But, if you don’t have much time left, maybe some of your time could also be spent having fun.
The sad truth is that everyone dies.  While I know my dad died the way he would have wanted, I wish he hadn’t gone so quickly.  I wish we’d known.  His funeral was beautiful.  Really nice.  But, he was too dead to enjoy it.  It would have been more fun with him there.

Cancerversary Party
Surely the best kind of cancer party is the kind that celebrates not having cancer any more.  A close friend of mine just had a whole surprise weekend celebrating three years of being cancer free.  My friend came into the city, went to a dance club, stayed in a hotel, had fancy meals and saw a Broadway show.  The whole thing sounded awesome and I’m looking forward to celebrating cancer freedom in my future. In fact, when I’m done with all of my surgeries, I want to celebrate my new body with a bra party—buying new things and being healthy. Cancerversary parties can take many forms, and I’m looking forward to experiencing many years worth.

Every Day is A Holiday

Whether or not you have cancer, you can always find a reason to celebrate. Reasons to party can be anything from a new job to the arrival of spring.  If you’re struggling to find an excuse to throw a soiree, check out this list of bizarre holidays.  Throw a bar party for National Karaoke Week, or invite some friends over for National Shrimp Scampi Day (it’s tomorrow, so get cooking).




I love parties.  I love decorations and cake and matching tableware.  Most of all, I love my friends.  I have an amazing group of people who have supported me throughout this journey, and whenever I see them it feels like a party.  They have made my experience not only bearable, but at times… fun.

Sunday, April 27, 2014

5 Fun Things To Do If You Have Cancer: #1 FREE STUFF

In the vlog, I am at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #1:
FREE STUFF!

Scoring free stuff is one of the few perks that comes along with having breast cancer. Now you might ask,

“Jacey, what kind of free stuff are we talking about? I don’t need another free tote bag, you know what I mean?” 

I do.  As a breast cancer patient, you can get free wigs, compression sleeves, and mastectomy camisoles. Woo hoo!

“Um. That doesn’t sound fun. You promised this would be fun.”

I did.  You can also get free make-up, care packages, fitness classes, and even vacations! Bam! In fact, recently, I found a whole delightful website called Breast Cancer Freebies, that lists different organizations that give away free things to BC Patients.  I have first hand experience with a couple:

This workshop gives you make-up tips (I got help filling in my thinning eyebrows), and a lot of free make-up products from brands like Estee Lauder, Lancome and Cover Girl.
The best part wasn’t actually the free stuff (although I am continuing to enjoy that element), but connecting with other women who have cancer and witnessing the power clothes, make-up and wigs have to transform sick, defeated cancer patients into beautiful empowered women.
Workshops happen nationwide (in NYC there are several every month) and are supported by the amazing American Cancer Society.

This organization is not listed at Breast Cancer Freebies.  I found it through one of the navigators at my hospital.  My boyfriend emailed them a request for a care package and they sent me this lovely hot pink box:


It included a ton of FUN free swag (jewelry, make-up, clothes), most notably a mini pair of pink boxing gloves.  The story of the gloves comes from the founder (a breast cancer survivor), who received mini pink boxing gloves from another survivor when she was first diagnosed. Her original pair has been passed through five survivors. 

I brought my boxing gloves with me for my surgery and they were at my bedside the whole time.  All the nurses commented on them, and as I love to be the center of attention, I appreciated this freebie most of all.

Gilda’s Club offers a variety of free classes and workshops.  I am a member, but have only been twice. However, their classes look awesome.  They offer yoga, reiki, art classes, movie nights and more.  Many classes are available to patients, caregivers, and their families.  There are locations nationwide and membership is free.  Even though I’ve not been much, I have many friends who have benefitted from their services and I like knowing that this organization and their resources are open to me.

Here are a couple of highlights from Breast Cancer Freebies that I think look awesome, but haven’t experienced first hand:

            Little Pink Houses
This company gives free week-long beach retreats to breast cancer patients and their families.  You have to get yourself to the beach (locations range from California to The Virgin Islands), but once you’re there housing, meals, and activities (kayaking, hang gliding, concerts, massages, and more) are free. 
I applied for a retreat several weeks ago, and am waiting for a response—I have no idea how competitive it is.  I know that applications are given priority based on where in treatment you are (top priority is given to patients in active treatment, and you can apply at any time up until a year after your treatment ends). I’m keeping my fingers crossed that I hear from them soon.  Boyfriend and I could totally use a week at the beach.

I heard about this organization way back before I had cancer and even volunteered to be a Chemo Angel (someone who sends small gifts and letters to a cancer patient going through chemo), but never heard back… not the best sign.  However, since I volunteered the website has had an upgrade, so hopefully they’re a little more organized now.
Cancer patients undergoing chemo can sign up for this service and receive small gifts and letters from someone through the duration of treatment. I wish I had applied for their services when I started chemo. It feels good to know that someone beyond your support team is pulling for you, and it’s nice to get nice things in the mail (especially when you’re not even expected to follow-up with a thank you note).

“Wait!  Jacey!  You said these were fun things to do whether or not I had cancer.  All of these freebies are for cancer patients only!  What am I supposed to do?  Lie about having cancer?”

Ummmm….No.  Obviously not.  Your kharma will be ruined and you’ll be re-incarnated as a cockroach… a cockroach with cancer.   BUT fear not!  There are many freebies for non-cancer ridden persons.  Here are a couple free things I’ve enjoyed that have not required me to be full of cancer.

Yoga
I had a renewed interest in yoga when I was first diagnosed with cancer, and luckily free yoga is something that can be found in many places with or without a cancer diagnosis.  Here in NYC, Yoga to the People has a full schedule of donation based (free) classes, and there are many other studios that offer similar classes within their schedules. If you live in a city, a quick Google search will likely lead you to free yoga.
(Psst—if you have cancer, visit YogaBear.org for free yoga videos geared specifically to you AND links to classes in your area).

Daily Deals
A blog I really enjoy is NYC Daily Deals.  Each day they highlight a “deal” in NYC, most of which are freebie alerts.  Through following this blog I’ve found lots of fun free things (Ben & Jerry’s Free Cone Day, free movie screenings, and more).  Finding a blog in your area like this that’s good and not too spammy may take some digging, but I’m confident they’re out there, and the rewards are worth it.  I mean, discovering NYC ‘s Free Macaroon Week while I was in the middle of chemo was a major win for me. 

So go!  Be free! Get free things!  (And come back for Fun Thing #2 tomorrow!)




Friday, April 18, 2014

Entry 7: BONUS BLOG: Breast Biopsy



This vlog is fairly accurate to the experience of an ultrasound guided core biopsy. However, we did cut some things and change some things during filming. So, here are some additional facts (and corrections) about these kinds of biopsies.

1) The first step in the biopsy prep is actually putting betadine (a sterilizing solution) on the area. I had a whole section in the script about it, because watching a lot of medical shows, I had always wondered what that brownish/orangish solution they smeared on patients was called. FYI: It’s called betadine, and the doctors informed me it was colored because so doctors can easily determine which areas were sterile. According to Dr. Marshall, at one time there was a manufacturer who made a clear version of the solution, but they ended up being sued because of infections that resulted from doctors not knowing where they had sterilized.

Interesting, right? No? My director Regina didn’t think so, either, so we cut it.

2) I lied. The first, first step of this biopsy was removing my bra. However, in this vlog you could see my bra on multiple occasions. I don’t mind running around with my boobs out, because at this point EVERYONE has seen them. When you have breast cancer, you walk into an exam room and the first thing a doctor says is, “take it out.” You’re supposed to just know this means your breast.That said, the other actors in my vlogs are not just colleagues, but friends, and when I can avoid making everyone uncomfortable, I do and I keep on my bra. Usually we do a pretty good job of hiding it. This time, not as much.

This is the actual size of a biopsy needle.  Equally disconcerting.

3) The popping sound of a hollow needle during a core biopsy is not similar to the wet uncorking pop we put in this vlog (mostly for comedic effect). In reality, it sounds like the punch of a stapler. It is terribly disconcerting.



4) This vlog script originally ended with Marla giving me post op instructions (keep pressure on the area, use ice packs over the next few days, do not bathe or work out for 24 hours, etc.) and us parting ways.

In the interest of educating others experiencing breast cancer, I wanted to keep in the post-op instructions.

In the interest of storytelling, I wanted to keep in the goodbye (because Marla was a super important part of my journey, and saying good-by to her was somewhat ceremonious). I have not seen Marla again since that day. As evidenced by this vlog, I’ve thought of her often.

In the interest of time, we cut it. We were really rushing to leave the space that day, and felt this ending (while perhaps less factual), delivered a better punch anyway.

5) For a SUPER informative and accurate depiction of an Ultrasound Guided Breast Biopsy, check out the video HERE. Note that if you click on the video of the “Core Needle Biopsy,” you will be seeing a biopsy with stereotatic mammography. That is not the same as the test I went through. Just… you know… FYI.

In real life, the last couple weeks have been crazy with cancer treatments, but as things start slowing down, expect more blogs and vlogs. Can’t wait to share the rest of this insane experience with everyone! See you next week!