Tuesday, September 2, 2014

Entry #8: BONUS BLOG: Cancer Sparkle


One of the great rules of theatre is never work with kids or animals.  In real life, this portion of my experience included both.

Immediately after my appointment with Dr. Radio, I went to babysit on the Upper East Side (as indicated in this vlog), and I called five of my closest friends (including my sister), to discuss the appointment. 

After cleaning this incredible uptown apartment—washing dishes, making beds, stuffing Barbies back into their dream houses—I had to complete my final task before after-school pick-up: walking Sparkle. Sparkle, the dog.

This is not the real Sparkle, but I promise, they are equally adorable.

Sparkle is the whitest creature I’ve ever seen. She looks like a pom-pom with gorgeous sparkly black eyes.  She is a bitch in the truest sense of the word.

Every time I walked Sparkle, she would exit the lobby of her building prancing like a princess, then dug her heels into the pavement, making me look like moron as I tugged against two pounds of fluff.  My whole body weight was thrown into yanking on a pink glitter leash in the middle of 59th street, and Sparkle the chipmunk-sized glamour dog didn’t move an inch. 

People would point and stare and laugh.  The doormen would come outside just to watch the battle ensue. No joke.

Now, on this day, I hadn’t been thinking about Sparkle.  I’d been thinking about cancer, and talking to Sam (an expert in the field).  When we hung up the phone, I realized there was no one else to call. I was alone with my thoughts and broke down into fits of sobs—heaving, hysterical fits of crying.  I braced myself against the wall, because I was crying so hard, and when I looked down at my feet, guess who was looking up at me with her big black eyes?

Animals can be so intuitive in such moments, and the look on Sparkle’s face had such a clear message.  And that message was this, “Bitch.  Stop crying and take me for my walk.”

So, I pulled my shit together and did exactly that.  And you know what?  Sparkle behaved just as she always did.  She rammed her fucking paws into the sidewalk and refused to budge and I cursed the people of the Upper East Side for creating a world where even the dogs are spoiled brats.

Note: Two days later, I was let go from this job.  They wanted someone who could commit to five days a week, and I only had two open.  So, Sparkle and I parted ways.

Why do I tell you this?

Because even when you have cancer, you still have to walk the dog.  You still have to make money, and do the dishes, and that’s actually a good thing. Sparkle didn’t feel sorry for me.  She didn’t tell me I should slow down, or ask how I was feeling, or tell me how strong I was or expect anything less from me than she had come to expect. 


At the time, I would have appreciated a little more compassion; but now, after months of pointed questions…
"How ARE you?” 
“How are you feeling?”  
and stunning revelations 
“You’re looking like your old self!"  
"I’m starting to see that Jacey sparkle again." 
I've come to realize that normal--laundry and taking out the trash--normal is a gift.
.

Friday, August 8, 2014

Hiatus

So… there was this time I had cancer.  If you’ve gotten to this page, you probably already knew that much.  As my vlog has chronicled, I was diagnosed with breast cancer in October of 2013.  Without giving up too many “spoilers,” I will say that by May of 2014, I was pretty much back to my old self, and to that end working on a thousand projects.

In June, I began a film project that took up most of my time until I left for Vermont (where I’ve been appearing as “Carrie Pipperidge in Carousel for the summer). I wasn’t sure how often I would be getting back into the city or how much time I would be able to devote to the vlog while living here in the mountains.  Turns out: not very much.  So, a hiatus that I thought would last during the month of June has ended up lasting all summer.

But, we’re coming back!  September 4th, That Time I Had Cancer will be rocking on the YouTube with doctors, and chemo and possible a trip to Russia.  Cancer continues to be an insane, life-changing journey for me and after all the bull shit, I am excited by the joy I feel sharing my experiences with others.

Thank you so much for watching!  I will be re-posting my first 1o vlogs over the next month on my Facebook Page (you can follow me by clicking HERE), and will be updating the blog (here and at www.ThatTimeIHadCancer.com) in anticipation of Entry 11 in September.

If you enjoy what you see—please share it!  Tweet it!  Talk about it!  Comment on the videos or shoot me a line.


I am eager to share the rest of my story with all of you—I hope you’re eager to watch.

Thursday, May 15, 2014

5 Fun Things To Do If You Have Cancer: #5: LIBERATE!



In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #5

LIBERATE!

I would say I am a fairly confident person. I don’t think there’s a lot of big things that scare me: not spiders, or heights, or the dark. But, I learned through having cancer that I have a lot of little every day fears that inhibit me all the time.  Fear of judgment, fear of rejection, fear of failure.  We all know these fears. Moreover, we all know these are stupid fears, because regardless of what we do, we are going to be judged, and rejected; and sometimes we will fail.  What I didn’t realize before cancer was how insidious these fears are.  Here is a humiliating example:

When I ride the subway, if I am sitting on a crowded train next to someone who is Black/Latino/Asian, I will not change seats even if a “better seat” (ie. one that does not require me to pressed up against the person next to me) opens up. Why? Because I don’t want anyone to think I’m racist, and that I’m changing seats because I don’t want to sit next to a Black/Latino/Asian person.

I’m pretty sure the fat black dude who I rode body to body with on the F Train, until we were the only two people left in the car thinks I have a crush on him; but better that than he think I’m a small-minded girl from Wisconsin.  

I know! I’m crazy! But, if you look at your life, I promise you that you do something equally crazy to avoid the potential judgment of strangers.  But since cancer, I no longer fear the judgment of subway dwellers. 

The best thing about cancer is that (for a while at least), nothing else really matters. For a while, you don’t give a fuck about anything less serious than cancer. Not giving a fuck is the most liberating thing in the whole God damn world.

Now, as time goes on, this feeling of freedom lessens; but the reminder of “Hey, you’re gonna die.  Maybe not today.  Maybe not tomorrow, but it’s gonna happen” helped motivate me to sit wherever the fuck I want on the subway!

More than that, it has helped me ask for more.  If you want something—don’t hope for it, don’t wish for it, don’t secret it—ask for it.  You won’t get things that you don’t ask for or won’t admit you want. Sometimes, you will be rejected; but that’s okay!  You’ll live (not forever), either way!

Having cancer is scary, but sometimes being scared—really scared, let’s you put other petty fears behind you.  That is one thing—one fun thing—cancer gave me. 

I hate people who talk about the ways in which cancer shaped their life for the better.  I hate it because I think about the last year of my life, and while I’ve found ways to have fun with cancer—I can think of a million more ways I would have had fun without it.

That said, the liberation from fear I've felt is something I hope to carry with me for the rest of my life.  Cancer has given me permission to take more risks, and hopefully that will mean more fun in the long run.

5 Fun Things To Do If You Have Cancer: #4: Take Some "Me Time"

In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #4

Take Some "Me Time"

I’m a person who chooses to be busy.  I tend to say “yes” to everyone and load my plate up with lots of “extra curriculars” I’ve been this way since elementary school.  Usually, this lifestyle makes me happy.  But, being busy with rehearsals and day jobs and writing projects does mean sacrificing time for “just me.”

If cancer isn’t an excuse for some “me time,” I don’t know what is.
I took some time for myself during treatment, but honestly, I wish I’d taken more.  As much as I enjoy being busy, I dream of having time to scrapbook and get pedicures. Big dreams.

Well, neither scrapbooking nor pedicures occurred during my months of treatment.  But, I did indulge in another favorite activity: jigsaw puzzles. Yup. I told you I have big dreams.

These are four of the jigsaw puzzles
I've done over the last few months.
Voila!
Weekends after chemo I would sit in my apartment and binge watch Netflix while doing thousand piece jigsaw puzzles. Puzzles are something I love to do, but they are as self-indulgent as it comes.  They take hours and hours to do, and once they’re done, you just say, “Oooh!  I did that!” then you take the whole thing apart. They are in no way productive, but I love them and I gave myself permission to take time to do things during this time that were dumb, fun, and unproductive. 

Whether or not you have cancer, everyday you should take 10 minutes for yourself.  Those 10 minutes shouldn’t just be spent watching the Real Housewives or playing Candy Crush.  I mean, they can be—it’s your 10 minutes, so who am I to dictate?  But from my personal experience I recommend getting creative—do something you love to do, but never do. It’s more fulfilling.  Maybe try doing something you loved as a kid (coloring is another favorite activity of mine).

Once a week, go crazy and give yourself an hour.  You deserve it! 


Monday, May 12, 2014

5 Fun Things To Do If You Have Cancer: #3 GIVE BACK!

In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #3:

Give Back.

In the months following my cancer diagnosis, I met a lot of other people with cancer.  Some of them had better situations than I, but many were in much worse shape with less support. 

Obviously I have been very focused on getting better, and the desire to heal is infectious, because as I help myself repair it’s made me feel good when I’ve been able to help others as well.  This isn’t about charity. This is about doing something for yourself by doing something for others.  Here are some ways to donate or volunteer and make yourself feel good.

Walk
There are many walks out there supporting breast cancer awareness, research, and more. I’ve done two of them, both of which I’d recommend for different reasons. 
Making Strides Against Breast Cancer is a walk benefitting the American Cancer Society (probably my favorite cancer charity).  This walk has a lot assets: 
1) the distance varies depending on your location, but most walks are around 5 miles (some are even less), so just about anyone can do it.
2) There is no minimum fundraising requirement.
3) Survivors are really celebrated at this walk. 

I’ve also done The Avon Walk for Breast Cancer. There are some drawbacks to The Avon Walk. For one, they have a very high fundraising minimum ($1,800 per participant).  For another, the walk is 39 miles over the course of two days…although for some the length is not a drawback, but a challenge.  That’s certainly how I’ve viewed it.  I’ve done the walk twice and have left feeling extremely accomplished.  Plus, it’s remarkable to bond with other people whose lives have been touched by breast cancer.
The other awesome thing about Avon is that the money raised goes primarily to local charities.  In fact, my free mammogram was courtesy of an Avon funded breast-imaging center. I like seeing my money at work, and I have definitely seen that with Avon.
Both Making Strides and Avon have walks nationwide unlike another walk I just discovered: The Moon Walk.  The Moon Walk has European origins and will be having its second annual event in the US in New York this July.  The walk requires all participants to wear a decorated bra for the duration of this marathon (literally 26.2 miles) that begins at 10 pm on a Saturday night.  It has a suggested fundraising minimum of $150.  I haven’t done this walk before, but may try and tackle it this summer.

         Hats Off!
Heavenly Hats is a charity that was founded by a twelve-year old boy in Wisconsin in 2001.  The charity sends packages of hats to hospitals and individuals nationwide to give cancer patients comfort and courage as they face their battles.  

At my Christmas party in December, I asked all of my guests to bring hats to donate to this cause (currently they are seeking women’s hats and soft hats for children ages 3-10).  We collected a dozen hats that I shipped off to Wisconsin just before Christmas. Hats must be brand new, but consider donating any unused hats you might have or maybe pick up some winter wear on spring clearance.

Write
Chemo Angel is a charity I blogged about before (as a way for cancer patients to get free things).  Its success is dependent on volunteers who send letters and/or gifts to someone currently undergoing chemotherapy. Signing up to be an angel is easy.  If you’re approved, you should be matched with a patient in 4-8 weeks, and will be asked to write weekly letters of encouragement to your patient.

Drive
The American Cancer Society provides rides for cancer patients through their Road to Recovery program.  If you are a licensed driver with a safe, reliable vehicle you can volunteer to drive patients in your area to and from treatments.  The program is also in need of coordinators who connect drivers with patients.

Cut Your Hair
A well-known way to give back to the cancer community is through hair donation. In order to donate, your hair must be at least 8 inches long. Some organizations require 10 or 12 inches, and other stipulations (like hair not being gray or chemically treated), may apply.
Many people donate to “Locks of Love,” which uses natural hair to create wigs for underprivileged children experiencing hair loss.  Another organization I like is Patene’sBeautiful Lengths.  Beautiful Lengths uses hair to make wigs for the American Cancer Society’s wig banks.  These banks provide free wigs to any woman experiencing hair loss as a result of cancer treatment.

Donate Your Wedding Dress
Brides Against Breast Cancer uses funds from wedding dress trunk shows to support the Center for Building Hope in Florida and its mother company the Health Support Network, which gives free cancer support to patients in need.  You can support this organization by donating a wedding gown, slip or veil from 2009 or later.







         Give A Room
Little Pink Houses of Hope offers week-long beach retreats to families struggling with breast cancer.  This organization is seeking volunteers to help facilitate their retreats, but also homeowners willing to donate their beach house for a week.  So, if you are lucky enough to have a beach house, consider donating it to Little Pink Houses, or to me… you know.  Whatever. No pressure.

Volunteer
There are many ways to volunteer and help patients with breast cancer.  One workshop I enjoyed during treatment was Look Good Feel Better. This program is seeking both general volunteers to facilitate the workshops and cosmetologists to demonstrate make-up tips.
Another cool way to volunteer is by joining The Army of Women and allowing researchers to email you for studies related to breast cancer research.  The Army needs women over 18 who have been diagnosed with breast cancer, as well as those who haven’t.  In my opinion, research is the most important part of breast cancer advocacy, because if it’s successful the other areas (awareness, prevention, etc.) become non-necessities.

Donate Your Dollars
Obviously every organization I’ve listed above is happy to take monetary donations. There are hundreds, possibly thousands of cancer related charities, so it can be hard to decide where to direct your dollars. If I were donating to one organization, I would choose the American Cancer Society, as their programs are so varied and accessible. They also contribute a great deal of funds to research (rather than just “awareness” programs). 
I also am fond of the Livestrong Foundation.  They offer lots of services to cancer patients, and have a great program for young people looking to protect their fertility.  However, both of these are huge non-for profits with lots of funding.
If you’re looking for something smaller, I like Fighting Pretty. They send awesome care packages to women undergoing breast cancer treatment. Your money won’t be curing cancer, but it will be putting a smile on someone’s face, which is super important and highly underrated.

Also, feel free to donate to ThatTimeIHadCancer.com!  We try to keep costs down, but each vlog costs $50-$100 to film.  So, if you’re enjoying them, consider shooting a few dollars our way.  We’ll show our thanks by adding you to the “Special Thanks” section at the end of an upcoming vlog (you’ll basically be famous).

I began vlogging for a lot of reasons. The biggest was that I really want to share my story with other cancer warriors, especially other young adults and breast cancer patients.  The experience has been incredibly rewarding. I have heard from many other people battling cancer, and in the end “giving back,” has given me way more than I imagined.


Check in for my final two “Fun Things To Do When You Have Cancer,” later this week!