Thursday, May 15, 2014

5 Fun Things To Do If You Have Cancer: #5: LIBERATE!



In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #5

LIBERATE!

I would say I am a fairly confident person. I don’t think there’s a lot of big things that scare me: not spiders, or heights, or the dark. But, I learned through having cancer that I have a lot of little every day fears that inhibit me all the time.  Fear of judgment, fear of rejection, fear of failure.  We all know these fears. Moreover, we all know these are stupid fears, because regardless of what we do, we are going to be judged, and rejected; and sometimes we will fail.  What I didn’t realize before cancer was how insidious these fears are.  Here is a humiliating example:

When I ride the subway, if I am sitting on a crowded train next to someone who is Black/Latino/Asian, I will not change seats even if a “better seat” (ie. one that does not require me to pressed up against the person next to me) opens up. Why? Because I don’t want anyone to think I’m racist, and that I’m changing seats because I don’t want to sit next to a Black/Latino/Asian person.

I’m pretty sure the fat black dude who I rode body to body with on the F Train, until we were the only two people left in the car thinks I have a crush on him; but better that than he think I’m a small-minded girl from Wisconsin.  

I know! I’m crazy! But, if you look at your life, I promise you that you do something equally crazy to avoid the potential judgment of strangers.  But since cancer, I no longer fear the judgment of subway dwellers. 

The best thing about cancer is that (for a while at least), nothing else really matters. For a while, you don’t give a fuck about anything less serious than cancer. Not giving a fuck is the most liberating thing in the whole God damn world.

Now, as time goes on, this feeling of freedom lessens; but the reminder of “Hey, you’re gonna die.  Maybe not today.  Maybe not tomorrow, but it’s gonna happen” helped motivate me to sit wherever the fuck I want on the subway!

More than that, it has helped me ask for more.  If you want something—don’t hope for it, don’t wish for it, don’t secret it—ask for it.  You won’t get things that you don’t ask for or won’t admit you want. Sometimes, you will be rejected; but that’s okay!  You’ll live (not forever), either way!

Having cancer is scary, but sometimes being scared—really scared, let’s you put other petty fears behind you.  That is one thing—one fun thing—cancer gave me. 

I hate people who talk about the ways in which cancer shaped their life for the better.  I hate it because I think about the last year of my life, and while I’ve found ways to have fun with cancer—I can think of a million more ways I would have had fun without it.

That said, the liberation from fear I've felt is something I hope to carry with me for the rest of my life.  Cancer has given me permission to take more risks, and hopefully that will mean more fun in the long run.

5 Fun Things To Do If You Have Cancer: #4: Take Some "Me Time"

In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #4

Take Some "Me Time"

I’m a person who chooses to be busy.  I tend to say “yes” to everyone and load my plate up with lots of “extra curriculars” I’ve been this way since elementary school.  Usually, this lifestyle makes me happy.  But, being busy with rehearsals and day jobs and writing projects does mean sacrificing time for “just me.”

If cancer isn’t an excuse for some “me time,” I don’t know what is.
I took some time for myself during treatment, but honestly, I wish I’d taken more.  As much as I enjoy being busy, I dream of having time to scrapbook and get pedicures. Big dreams.

Well, neither scrapbooking nor pedicures occurred during my months of treatment.  But, I did indulge in another favorite activity: jigsaw puzzles. Yup. I told you I have big dreams.

These are four of the jigsaw puzzles
I've done over the last few months.
Voila!
Weekends after chemo I would sit in my apartment and binge watch Netflix while doing thousand piece jigsaw puzzles. Puzzles are something I love to do, but they are as self-indulgent as it comes.  They take hours and hours to do, and once they’re done, you just say, “Oooh!  I did that!” then you take the whole thing apart. They are in no way productive, but I love them and I gave myself permission to take time to do things during this time that were dumb, fun, and unproductive. 

Whether or not you have cancer, everyday you should take 10 minutes for yourself.  Those 10 minutes shouldn’t just be spent watching the Real Housewives or playing Candy Crush.  I mean, they can be—it’s your 10 minutes, so who am I to dictate?  But from my personal experience I recommend getting creative—do something you love to do, but never do. It’s more fulfilling.  Maybe try doing something you loved as a kid (coloring is another favorite activity of mine).

Once a week, go crazy and give yourself an hour.  You deserve it! 


Monday, May 12, 2014

5 Fun Things To Do If You Have Cancer: #3 GIVE BACK!

In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #3:

Give Back.

In the months following my cancer diagnosis, I met a lot of other people with cancer.  Some of them had better situations than I, but many were in much worse shape with less support. 

Obviously I have been very focused on getting better, and the desire to heal is infectious, because as I help myself repair it’s made me feel good when I’ve been able to help others as well.  This isn’t about charity. This is about doing something for yourself by doing something for others.  Here are some ways to donate or volunteer and make yourself feel good.

Walk
There are many walks out there supporting breast cancer awareness, research, and more. I’ve done two of them, both of which I’d recommend for different reasons. 
Making Strides Against Breast Cancer is a walk benefitting the American Cancer Society (probably my favorite cancer charity).  This walk has a lot assets: 
1) the distance varies depending on your location, but most walks are around 5 miles (some are even less), so just about anyone can do it.
2) There is no minimum fundraising requirement.
3) Survivors are really celebrated at this walk. 

I’ve also done The Avon Walk for Breast Cancer. There are some drawbacks to The Avon Walk. For one, they have a very high fundraising minimum ($1,800 per participant).  For another, the walk is 39 miles over the course of two days…although for some the length is not a drawback, but a challenge.  That’s certainly how I’ve viewed it.  I’ve done the walk twice and have left feeling extremely accomplished.  Plus, it’s remarkable to bond with other people whose lives have been touched by breast cancer.
The other awesome thing about Avon is that the money raised goes primarily to local charities.  In fact, my free mammogram was courtesy of an Avon funded breast-imaging center. I like seeing my money at work, and I have definitely seen that with Avon.
Both Making Strides and Avon have walks nationwide unlike another walk I just discovered: The Moon Walk.  The Moon Walk has European origins and will be having its second annual event in the US in New York this July.  The walk requires all participants to wear a decorated bra for the duration of this marathon (literally 26.2 miles) that begins at 10 pm on a Saturday night.  It has a suggested fundraising minimum of $150.  I haven’t done this walk before, but may try and tackle it this summer.

         Hats Off!
Heavenly Hats is a charity that was founded by a twelve-year old boy in Wisconsin in 2001.  The charity sends packages of hats to hospitals and individuals nationwide to give cancer patients comfort and courage as they face their battles.  

At my Christmas party in December, I asked all of my guests to bring hats to donate to this cause (currently they are seeking women’s hats and soft hats for children ages 3-10).  We collected a dozen hats that I shipped off to Wisconsin just before Christmas. Hats must be brand new, but consider donating any unused hats you might have or maybe pick up some winter wear on spring clearance.

Write
Chemo Angel is a charity I blogged about before (as a way for cancer patients to get free things).  Its success is dependent on volunteers who send letters and/or gifts to someone currently undergoing chemotherapy. Signing up to be an angel is easy.  If you’re approved, you should be matched with a patient in 4-8 weeks, and will be asked to write weekly letters of encouragement to your patient.

Drive
The American Cancer Society provides rides for cancer patients through their Road to Recovery program.  If you are a licensed driver with a safe, reliable vehicle you can volunteer to drive patients in your area to and from treatments.  The program is also in need of coordinators who connect drivers with patients.

Cut Your Hair
A well-known way to give back to the cancer community is through hair donation. In order to donate, your hair must be at least 8 inches long. Some organizations require 10 or 12 inches, and other stipulations (like hair not being gray or chemically treated), may apply.
Many people donate to “Locks of Love,” which uses natural hair to create wigs for underprivileged children experiencing hair loss.  Another organization I like is Patene’sBeautiful Lengths.  Beautiful Lengths uses hair to make wigs for the American Cancer Society’s wig banks.  These banks provide free wigs to any woman experiencing hair loss as a result of cancer treatment.

Donate Your Wedding Dress
Brides Against Breast Cancer uses funds from wedding dress trunk shows to support the Center for Building Hope in Florida and its mother company the Health Support Network, which gives free cancer support to patients in need.  You can support this organization by donating a wedding gown, slip or veil from 2009 or later.







         Give A Room
Little Pink Houses of Hope offers week-long beach retreats to families struggling with breast cancer.  This organization is seeking volunteers to help facilitate their retreats, but also homeowners willing to donate their beach house for a week.  So, if you are lucky enough to have a beach house, consider donating it to Little Pink Houses, or to me… you know.  Whatever. No pressure.

Volunteer
There are many ways to volunteer and help patients with breast cancer.  One workshop I enjoyed during treatment was Look Good Feel Better. This program is seeking both general volunteers to facilitate the workshops and cosmetologists to demonstrate make-up tips.
Another cool way to volunteer is by joining The Army of Women and allowing researchers to email you for studies related to breast cancer research.  The Army needs women over 18 who have been diagnosed with breast cancer, as well as those who haven’t.  In my opinion, research is the most important part of breast cancer advocacy, because if it’s successful the other areas (awareness, prevention, etc.) become non-necessities.

Donate Your Dollars
Obviously every organization I’ve listed above is happy to take monetary donations. There are hundreds, possibly thousands of cancer related charities, so it can be hard to decide where to direct your dollars. If I were donating to one organization, I would choose the American Cancer Society, as their programs are so varied and accessible. They also contribute a great deal of funds to research (rather than just “awareness” programs). 
I also am fond of the Livestrong Foundation.  They offer lots of services to cancer patients, and have a great program for young people looking to protect their fertility.  However, both of these are huge non-for profits with lots of funding.
If you’re looking for something smaller, I like Fighting Pretty. They send awesome care packages to women undergoing breast cancer treatment. Your money won’t be curing cancer, but it will be putting a smile on someone’s face, which is super important and highly underrated.

Also, feel free to donate to ThatTimeIHadCancer.com!  We try to keep costs down, but each vlog costs $50-$100 to film.  So, if you’re enjoying them, consider shooting a few dollars our way.  We’ll show our thanks by adding you to the “Special Thanks” section at the end of an upcoming vlog (you’ll basically be famous).

I began vlogging for a lot of reasons. The biggest was that I really want to share my story with other cancer warriors, especially other young adults and breast cancer patients.  The experience has been incredibly rewarding. I have heard from many other people battling cancer, and in the end “giving back,” has given me way more than I imagined.


Check in for my final two “Fun Things To Do When You Have Cancer,” later this week!

Monday, April 28, 2014

5 Fun Things To Do If You Have Cancer: #2 PARTY!

In the vlog, I’m at the beginning of my cancer journey. In real time, I am coming out of what has been by far the least fun part of my journey. I think the best time to seek out fun is when life sucks. So, to that end, I’ve come up with five fun things to do if you have cancer (or even if you don’t). 

Fun Thing #2:
PARTY!

No one hears that they have cancer and immediately feels the urge to celebrate.  But, most people immediately register cancer as a huge life-changing event. Call me crazy, but life-changing events (marriages, babies, birthdays) often coincide with partying. 

Now, if you have cancer and that doesn’t give you the urge to party, that’s totally cool. In fact, that’s normal. I think society can put a lot of pressure on people who are sick to act like they’re okay, and I don’t want to be a part of that.  That said, if you have cancer and you need to escape your feelings of sadness and anger and fear, I have found parties are an effective way of taking a vacation from those feelings.

Here are some cancer party ideas, based on my experience;

Party Before Surgery/Chemo/Radiation
On the eve of any of these smaller life changes within the huge life change that is cancer, I can pretty much guarantee you will feel scared, anxious, stressed, sad, angry, or some combination of all of these.  Being with friends and “celebrating” helped me expel a lot of this nervous energy.
                 
                  My Pre-Chemo Party
A week before I started chemo, I went home to Wisconsin and my friend Julie got a group of my “home friends” together to come hang out.  The resulting party felt like a southern Sip-And-See.  A Sip-And-See, is like a baby shower after a baby is born where people drink tea (sip) and meet the new baby (see).

In this case, we sat in my basement and I got to catch up with my friends and talk about everything that happened to me so far..  They brought a lot of party foods, which were as essential as the conversations.

At that time what I really needed was to talk through things.  I was just devising my plan for treatment, and I wanted to know that I had my friends’ support.  This party gave me that.

                  My Pre-Surgery Party
Two days before surgery, my boyfriend surprised me by reserving us a room at the Waldorf-Astoria (!).  After we checked in, my boyfriend took me to a jazz club nearby where a few of my friends were waiting to surprise me.  We had a couple drinks and then went back to our room at the Waldorf, where we drank and ate chocolate covered strawberries and picked up some Dutch guys and jumped on the bed and sang “Happiness” so loud that security came.  Twice. 

This party involved no talk of cancer, which was what I needed at this point during my treatment. For a night I was able to be mostly normal and a little crazy, which was perfect.

Hair Cutting/Head Shaving Party
When I was told I was going to lose my hair, I called my hair stylist and told her I wanted to cut my hair short to prepare.  My friend Julie planned a whole party for me.  She invited all my friends to the salon, and several (including Julie) planned to cut their hair in solidarity.
I was really, really depressed about losing my hair, but knowing my lovely long-haired friends were willing to lose their locks with me was really touching.
Amazingly, I found myself looking forward to cutting my hair, when I had previously been inconsolable at the prospect.


      Chemo Party
So, the chemo nurses hated this, but I had an entourage every time I did chemo. Having my friends with me during my infusions (which were essentially 8 hours long), made chemo almost fun. Seeing my friends (who would often bring food and play music and bring coloring supplies) every three weeks was something that I actually missed when chemo was over.
The parties weren’t ragers or anything… they were pseudo parties… like eight hour tea parties without tea and with even more gossip.  They were maybe the best cancer parties I had.  I mean, the memory of them makes me miss chemo.  Almost.

You Made It!
A great reason to party is making it through a phase of treatment—getting through surgery, finishing chemo or radiation.  When I came home from surgery, I wasn’t ready to party, but the fact that my roommate decorated my apartment with a big party-style banner definitely lifted my spirits.
Now, it takes two to tango, and sometimes it only takes to make a party.  When I finished chemo, my boyfriend took me out on a date night to celebrate which was the exact amount of party I was able to handle.  Whether you’re a caregiver, friend, parent, or sibling this one on one celebration is great during phases of treatment when a big to-do might feel like too much.  The charm of these date nights was that I didn’t have to do a thing.  My boyfriend took care of everything at a time when I needed to be taken care of.
          
Terminal Cancer Party
I don’t have any first hand experience with this kind of party, and I feel the need to tread lightly so as not to offend anyone.  Online, I found a few examples of celebrations held by terminal cancer patients.  One told the story of a 21-year-old girl who always wanted to be a bride, so, her friends and family threw her a mock bachelorette party with shots and strippers and everything else you’d imagine. I also read was about Chuck Brandt, a gentleman with pancreatic cancer who just wanted a big party before he went (figuring he’d be “too dead to enjoy his funeral”). 
I can’t imagine the horror of receiving this kind of diagnosis.  But I would guess it wouldn’t be the kind of thing I’d be able to celebrate.  That said, this blog is part of a list of ways to have fun when you have cancer. From the day we’re born until the day we die, we have the choice to have fun or have a tantrum. I would imagine a terminal diagnosis would be full of a lot of fear and sadness and tantrums about “why me?” and that is as it should be. But, if you don’t have much time left, maybe some of your time could also be spent having fun.
The sad truth is that everyone dies.  While I know my dad died the way he would have wanted, I wish he hadn’t gone so quickly.  I wish we’d known.  His funeral was beautiful.  Really nice.  But, he was too dead to enjoy it.  It would have been more fun with him there.

Cancerversary Party
Surely the best kind of cancer party is the kind that celebrates not having cancer any more.  A close friend of mine just had a whole surprise weekend celebrating three years of being cancer free.  My friend came into the city, went to a dance club, stayed in a hotel, had fancy meals and saw a Broadway show.  The whole thing sounded awesome and I’m looking forward to celebrating cancer freedom in my future. In fact, when I’m done with all of my surgeries, I want to celebrate my new body with a bra party—buying new things and being healthy. Cancerversary parties can take many forms, and I’m looking forward to experiencing many years worth.

Every Day is A Holiday

Whether or not you have cancer, you can always find a reason to celebrate. Reasons to party can be anything from a new job to the arrival of spring.  If you’re struggling to find an excuse to throw a soiree, check out this list of bizarre holidays.  Throw a bar party for National Karaoke Week, or invite some friends over for National Shrimp Scampi Day (it’s tomorrow, so get cooking).




I love parties.  I love decorations and cake and matching tableware.  Most of all, I love my friends.  I have an amazing group of people who have supported me throughout this journey, and whenever I see them it feels like a party.  They have made my experience not only bearable, but at times… fun.